{"id":2715,"date":"2020-08-12T20:15:53","date_gmt":"2020-08-12T16:15:53","guid":{"rendered":"https:\/\/allergy.am\/?page_id=2715"},"modified":"2020-09-15T19:00:55","modified_gmt":"2020-09-15T15:00:55","slug":"hereditary-angioedema-about-the-project","status":"publish","type":"page","link":"https:\/\/allergy.am\/en\/projects\/hereditary-angioedema\/hereditary-angioedema-about-the-project\/","title":{"rendered":"About the project"},"content":{"rendered":"\n
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The “Hereditary angioedema Armenia” initiative was implemented within the framework of the “informed healthcare” program, with the co-financing of the European Union and the assistance of the Center for freedom of information in 2019, head of the project \u2013 Armine V. Hakobyan. The project was implemented with the purpose to improve the awareness of the population and health community about the problem. As a result, early and more accurate diagnosis and management of patients with hereditary angioedema will be possible, which will help to improve the quality of life of the patients. The electronic database of the patients with hereditary angioedema was another purpose of the project. During the program, which lasted four months, a lot of meetings were organized with regional healthcare workers, consultations were held with patients, a survey was conducted among healthcare workers, information materials were developed for physicians and patients, and a database of the patients with hereditary angioedema was created, which should continue to be updated. The results of the project were summarized at the event “Hereditary angioedema \u2013 a new look to rare disease”. A number of scientific papers have been published in the frame of the project. The initiative is a long-term and you can follow the current information on the Facebook page by the following link: https:\/\/www.facebook.com\/HAEArmenia<\/a><\/p>\n<\/div>\n\n\n\n